Tuesday, 25 July 2017

There seems to be progress in promises to investigate link between football and dementia... but can we trust the process any more?

Fifteen years after first promising to investigate a possible link between football and early on-set dementia, the FA and PFA's tender process for a potentially life-saving study investigating dementia among former players has been narrowed down to two prospective groups.







Fifteen years after Jeff Astle died aged 59 from — according to a coroner's report — early on-set dementia caused by years of heading footballs, finally there appears to be some progress.

Who knows how many former players have died needlessly in care homes or hospitals around the country as a result of the 'industrial disease' many believe to be contact sport's hidden shame?


I was told last week that the FA and PFA will reveal plans for a new study into the reportedly high incidence of dementia in former players 'by the end of this year'.
In February this year, the FA said they were seeking applications for a study into neurodegenerative disease in former players, three years after former FA chairman Greg Dyke apologised for his organisation's failure to deliver potentially life-saving research following the death of former England striker Astle in 2002.

Astle was posthumously diagnosed with Chronic Traumatic Encephalopathy, also found in former NFL players and boxers. His family established the Jeff Astle Foundation in 2015 after The Mail on Sunday revealed research promised after his death was never completed.

With so many broken promises over the years, there is scepticism among campaigners over sport's governing bodies willingness to deliver research. Some believe sport's governing bodies have too much to lose by seriously investigating the problem.


'We are cautiously optimistic that the FA finally appear to taking this issue seriously,' Astle's daughter Dawn told The Mail on Sunday. 'We have been let down too many times in the past to have complete trust in the process.'


SOURCE: MailOnline, Sam Peters

Lets hope that they are able to get some answers on this issue

Monday, 24 July 2017

Family's fury after police try to Taser grandfather with dementia at care home when he pulled out butter knife

A man with Alzheimer’s had a Taser fired at him by police at his care home – because he pulled out a butter knife.
Grandfather David Litherland, 73, was taken to hospital after falling when the weapon’s dart pierced his chest.
Wife Theresa said: “It was the most heartbreaking thing I’ve ever seen, I can still see the pain etched on his face.”
The Taser had failed to deploy the 50,000-volt shock that could have killed her husband, but he fell to the floor, banging his head.
Staff had called an ambulance when David became aggressive at lunch. They say the ambulance despatch contacted police.

Theresa, 62, said: “David had sat down to eat lunch when he started acting aggressively.
“This often happens when he is feeling unwell or frustrated as he can’t process his emotions.
“I got a call asking me to come to help. When I arrived the police were walking in – I had no idea they were there for my husband.
“They approached David and asked him three times to take his hands out of his pocket. Eventually he did, produced the butter knife and they fired it at him.”

Theresa says after the incident at The Gables home in Sutton Coldfield, West Mids, police claimed David “lunged” at them.
She said: “It was just a butter knife he was having dinner with.
 “I can understand why the police were called, but not why they used such force.”
Former engineer David is being cared for at Good Hope Hospital in Sutton Coldfield after a scan to check for a brain bleed.
West Midlands Police said officers found David aggressive and in possession of a knife.
They said: “As they approached he threatened them. They deployed a Taser so he could be safely restrained.”
Care home owner Sarj Bisla said: “We called the ambulance, told them his medical history and that he had a knife. They must have informed the police.
“The officers who came didn’t know about David’s illness.”

SOURCE: Mirror, Courtney Greatrex

Saturday, 22 July 2017

Grant boosts Alzheimer's care to combat loneliness

Generous Marlborough grant givers have provided a £7,000 boost to Alzheimer’s care that is combatting loneliness in people with dementia across the county.
Marlborough based Friends of Savernake Hospital and the Community pledged to donate the cash sum to Wiltshire charity Alzheimer’s Support.

The charity is attempting to tackle the negative impact that loneliness can have on older people by offering companionship and care for people living with dementia.
Trudy Granger, from the Friends of Savernake Hospital and the Community said: “This regular social contact with people can counter the effects of loneliness which is a massive issue, especially in Wiltshire because it has many rural areas.
"It is vital that the support workers can get out there and reach as many people as possible. It is also key to support family members who take on a massive amount of responsibility to keep the status quo at home.
"The grant will help people be supported to live at home for as long as possible and to actually be able to live an everyday life."

From providing companionship to helping people carry out their weekly shopping or social tasks, workers make sure that people living with dementia can stay as independent and safe in their own homes as possible.
The grant comes after Alzheimer’s Support secured a contract with Wiltshire Council to provide holistic dementia services throughout the county.
The grant from the Friends will be used in part to meet the travel costs of the Alzheimer’s Support dementia home support team workers.
Alzheimer’s Support CEO, Babs Harris, said: "Our support workers provide a lifeline to people who cannot get out and about under their own volition, and in the East of Wiltshire especially, our travel costs are high.

"It is wonderful to receive support for travel costs in the area in particular."
There is currently 6,500 people living with dementia in Wiltshire, a figure which is expected to rise to 8,500 by 2020.


SOURCE: Gazette and Herald

What an excellent bonus to dementia sufferers and their families.

Thursday, 20 July 2017

Art can be a powerful medicine against dementia

A few weeks ago, turning on the radio, I hear a voice saying that creative writing can help wounds heal faster. Startled, I turn the volume up. Volunteers were given small wounds; half were then asked to write about something distressing in their life, the other half about something mundane. The wounds of the confessional writers healed substantially more quickly. A thought or a feeling is felt on the skin. Our minds, which have power over our bodies, are in our bodies and are our bodies: we cannot separate the two. Words, self-expression, can tangibly help pain and suffering. Art can be medicine, for body and soul.


Over and over again, I am reminded of the transformative power of art. Answering the phone, I hear a deep and husky voice: “Doe, a deer, a female deer.” My mother, 85, frail, registered blind, bashed about by cancer and several strokes, is having singing lessons. At school, she was made to mouth the words of songs and she never sang again until now. Eighty years after being told she was tone deaf, her voice is being released. “Me, a name I call myself…”
Or recently I found myself in a hall in London, holding hands with a tiny woman from Jamaica and a large man from Birmingham, we dance. Bit by bit, our self-consciousness falls away and we grin at each other, laugh. Dementia has robbed them of their verbal ability – but there are many different languages, many different forms of embodied knowledge and ways that we can connect with each other.
Dementia can look like solitary confinement – and solitary confinement is a torture that drives most people mad
Or sitting in a church in Essex on a Sunday in June, I look across at my friend’s mother. She is in her 90s and has dementia. There are days when she is wretched, chaotic and scared, but each Sunday she is soothed and even enraptured by singing the hymns that she sang when she was a girl. The music has worn grooves in her memory and while she may not be able to speak in full sentences any more, she can sing Abide With Me in a true voice and her face, lifted up, looks young, eager, washed clean of anxiety. My friend thinks that at these moments her mother’s brain comes together, “like a flower reviving when it’s being soaked in water”. People with dementia, she says, need to be drenched in art.
And this is precisely what the report of an all-party parliamentary group inquiry into arts, health and wellbeing, to be launched on Wednesday 19 July, will say. After two years of evidence gathering, roundtables and discussions with service users, health and social care professionals, artists and arts organisations, academics, policy-makers and parliamentarians, its unambiguous findings are that the arts can help keep us well, aid our recovery and support longer lives better lived; they can help meet major challenges facing health and social care – ageing, long-term conditions, loneliness and mental health; and they can help save money in the health service and in social care.

Dementia is an area where the arts can radically enhance quality of life by finding a common language and by focusing on everyday, in-the-moment creativity. As Lord Howarth of Newport, co-chair of the all-party parliamentary group, said: “The arts have a vital role to play for people with dementia. Research demonstrates that visual arts, music, dance, digital creativity and other cultural activities can help to delay the onset of dementia and diminish its severity. This not only makes a huge difference to many individuals but also leads to cost savings. If the onset of Alzheimer’s disease (which accounts for 62% of dementias) could be delayed by five years, savings between 2020 and 2035 are estimated at £100bn. Those are powerful statistics, but this isn’t just about money; the arts can play a powerful role in improving the quality of life for people with dementia and for their carers.”

It’s what Seb Crutch and his team are exploring in their inspiring project at the Wellcome Foundation. It’s what is happening with Manchester Camerata’s Music in Mind or with Music for a While, a project led by Arts and Health South West with the Bournemouth Symphony Orchestra, with Wigmore Hall’s participatory Music for Life, with the project A Choir in Every Home and Singing for the Brain; with dance classes in hospitals and residential homes; with art galleries and museums that encourage those with dementia to come and talk about art.



There are optimistic, imaginative endeavours going on all over the country, in theatres, galleries, cinemas, community centres, pubs, bookshops, peoples’ houses. It’s happening at a macro- and a micro-level. At a conference run by the Creative Dementia Arts Network, where arts organisations and practitioners gathered to share experience, I met two young students from an Oxford school who with fellow students go into local old people’s homes to make art: not the young and healthy doing something for the old and the frail, but doing it with them, each helping the other: this is the kind of project that is springing up all over the country.

I attended one of the monthly sessions at the Royal Academy in London where people with dementia who have been art-lovers through their life – and are art-lovers still – come to talk about a particular work, led by two practising artists. We sat in front of an enigmatic painting by John Singer Sargent, and there was an air of calmness, patience and above all, time, and there were no wrong opinions. There are many ways of seeing. People with dementia are continually contradicted and corrected, their versions of reality denied: it’s Sunday not Friday; you’ve already eaten your breakfast; I’m your wife not your mother; anyway, you are old and she is dead …. In this humanising democratic space, people were encouraged to see, think, feel, remember and express themselves. Slowly at first, they began to talk. There was a sense of language returning and of thoughts feeding off each other. They were listened to with respect and were validated.
Validation is crucial. We are social beings and exist in dialogue; we need to be recognised. In health, we live in a world rich with meanings that we can call upon as a conductor calls upon the orchestra, and are linked to each other by a delicate web of communications. To be human is to have a voice that is heard (by voice I mean that which connects the inner self with the outer world). Sometimes, advanced dementia can look like a form of solitary confinement – and solitary confinement is a torture that drives most people mad. To be trapped inside a brain that is failing, inside a body that is disintegrating, and to have no way of escaping. If evidence is needed, this report robustly demonstrates that the arts can come to our rescue when traditional language has failed: to sing, to dance, to put paint on paper, making a mark that says I am still here, to be touched again (rather than simply handled), to hear music or poems that you used to hear when you were a child, to be part of the great flow of life.

I think of the wonderful film Alive Inside, made about a project in a huge care home in America: an old man with advanced dementia sits slumped in a wheelchair. He drools; his eyes are half closed and it’s impossible to know if he is asleep or awake. A few times a day, soft food is pushed into his mouth. Then someone puts earphones on his head and suddenly the music that he loved when he was a strong young man is pouring into him. Appreciation of music is one of the last things to go. His head lifts. His eyes open and knowledge comes into them. His toothless mouth splits into a beatific grin. And now he is dancing in his chair, swaying. And then this man – who doesn’t speak any longer – is actually singing. The music has reached him, found him, gladdened him and brought him back into life.
It’s like a miracle – but one that happens every day, in care homes, in community halls, in hospitals, wherever kind and imaginative people are realising that the everyday creativity is not an add-on to the basic essentials of life, but woven into its fabric. Oliver Sacks wrote “the function of scientific medicine… is to rectify the ‘It’.” Medical intervention is costly, often short-term and in some cases can be like a wrecking ball swinging through the fragile structures of a life. But art calls upon the “I”. It is an existential medicine that allows us to be subjects once more.


SOURCE: Nicci Gerrard, The Guardian

Another reminder to us all that sensory development and stimulation plays such an invaluable part in the enrichment of a dementia sufferer's life. Singing for the Brain groups are extremely popular in our area on Lincolnshire and volunteers are always needed. How wonderful to be able to see the power of music or other art forms really touch someone and evoke long forgotten memories and emotions. 

Wednesday, 19 July 2017

Chickens at Kapara aged-care home at Glenelg South helping residents with dementia


THE new residents of an aged care home in Glenelg South have quickly established themselves in the pecking order.

In a South Australian first, the ACH Group’s Kapara home has introduced HenPower, a program aimed at tackling social isolation and depression among people living with dementia.
Henny Penny, Chooky Looky, Chicken Licken and Priscilla have made themselves at home in Kapara’s memory support unit Rose Cottage since moving in two months ago.
The chooks appear to be relishing their role in the “creative ageing” program that mixes hen-keeping with arts activities and visits from local children for a weekly “intergenerational playgroup”.
The residents and kids make chicken-themed artworks together, while volunteers have also helped residents paint and knit pieces for the SALA festival.

Kapara senior manager Lyn Bertram says the residents love the chooks.
“For many of them, it brings back memories of their younger days, and they really enjoy handling them and petting them, feeding and looking after them,” she says.
“This program is about building relationships through hen-keeping and we are delighted by the positive outcomes it has already delivered.”

Resident Rhonda Fitzgerald, 92, says: “Aren’t they gorgeous? You just want to pick them up and cuddle them. The chickens have brought so much joy to us all.”
Charity Equal Arts launched HenPower in 2011 in the UK, where it is now used in more than 40 care homes.
HenPower manager Jos Forester-Melville says the program “gives people a role and responsibility with the hens” and is “a catalyst for building relationships and exploring creativity”.
“Bringing creativity into care is a fantastic way to engage people and aid communication, especially for those living with dementia,” she says.

The hens, coop and feed needed to establish the program at Kapara were donated by the PetStock business.


SOURCE: Tim Williams, The Advertiser

What a great idea... something that can benefit everyone and bring joy to those suffering from dementia and loneliness. And with the added benefit of free range eggs, its win win isnt it?
For a long time now studies have shown the calming influence the presence of a pet can bring, especially one that you can stroke and care for on a daily basis. 

Monday, 17 July 2017

Grandmother, 83, is 'kicked off her 6-star cruise for having a panic attack': Dementia sufferer and her veteran husband claim they were thrown out of their £8,000 suite after she fell ill

A day before the end of their cruise around the Med, the couple claim they were ordered off the ship and abandoned in an Italian hospital. Mrs Hayward, who has mild dementia, was sedated against her will and left bruised and screaming for help, they said.

As the ship sailed off without them, distraught Mr Hayward, 87, who fought in the Korean War and at Suez, was left in a hospital corridor with their hastily-packed suitcases, with only a trolley to sleep on and no means of contacting family.
Italian doctors apparently struggled to diagnose Mrs Hayward’s dementia, leading to various treatments causing what she calls ‘eight days of torture and starvation’.Yesterday, as he visited his wife who is still ill in a British hospital, Mr Hayward said: ‘They dumped us and sailed off, leading to a true nightmare of literally screaming for help and being ignored. This really has been the most traumatic, expensive and without exaggeration the very worst experience of my life. As one who served in the front line in the Korean War and the Suez conflict, they were doddles by comparison.’
The couple’s traumatic ordeal began in the early hours of April 25 as they slept in their sumptuous cabin aboard the Seven Seas Explorer – which the cruise company boasted was ‘the most luxurious ship ever built’ at its fanfare launch in 2015. Every cabin on the marble-floored £300million liner is an opulent suite with a balcony to the sea.
Mrs Hayward awoke from a nightmare at 3am and had a panic attack linked to her dementia. Her husband recalled: ‘I switched on the light and she started kicking at me and shouting. She looked wild-eyed and angry.’
He said this had happened once before, at home, and on that occasion she was quickly calmed. But this time, in unfamiliar surroundings, he said, ‘the more I attempted to calm her, the louder she became. In desperation, I rang reception to ask for assistance and shortly after a security guard appeared and began shouting loudly at Marguerite to “Keep quiet”. Then our suite was filled with several people including the ship’s doctor and his nurse.’
They injected Mrs Hayward with a sedative and she soon returned to sleep, with her husband cuddling her. The next morning, she was calm and relaxed and remembered nothing of the night-time drama. The couple were about to go to breakfast when they were summoned to a meeting with the ship’s officers. Mr Hayward recalled: ‘One of them said the incident had been reported to their head office in Miami, who had ordered we must leave the ship immediately. I pleaded with him to let us stay because the ship was docking at Rome in less than 24 hours and we would be on our way home anyway. But they said Miami had given them their orders.’
The cruise firm claims there was ‘mutual agreement’ to leave the ship, but the couple strongly dispute this and say they were ‘thrown off’ despite their protestations. The company said it was ‘in Mrs Hayward’s best interests’ to be seen by medics ashore.
They were handed a medical bill for $1,370 (£1,000) then whisked ashore by tender to the southern Italian port city of Sorrento, where an ambulance was waiting along with a man who it later transpired was the cruise company’s port agent. A letter from the ship’s doctor to the Italian medics stated: ‘Suspected diagnosis: paranoid schizophrenia.’ The couple are adamant this was a misdiagnosis of Mrs Hayward’s disorientation.

At the quayside, said Mr Hayward, ‘my wife was asked to get onto a stretcher - but she was standing quite calmly and declined to get onto it, so they manhandled her into the back.They stopped me from getting in with her. At this, she became very agitated, so reluctantly they allowed me to get into the front.’
At a run-down hospital in Sorrento – photos show crumbling exterior walls – Mrs Hayward was put on a drip and given an oxygen mask, quickly becoming unconscious, her husband said.‘She lay flat on her back for several hours with her eyes closed and her mouth wide open. I sat in the corridor a few feet away. Everyone ignored me and no-one I tried to speak to spoke English. Marguerite eventually woke up and started screaming. I was distraught.’
Mr Hayward was given a chair to sit on, and told he could sleep overnight on a trolley downstairs. The Haywards, of Lavenham, Suffolk, had no mobile phone with them, but luckily, a British woman who happened to be in the hospital phoned the couple’s son Martin in the UK.
Martin Hayward already knew something was wrong, as he had been telephoned by the port agent. The agent had told him his mother had suffered a ‘psychotic’ episode and been transferred off the ship to hospital. Martin said: ‘The agent said he wasn’t there, he was driving home. He gave me the hospital’s phone number and I tried to ring it more than 50 times, but no one answered.
‘Then I received a call from an English lady who had found dad very distressed, and let him speak to me. He was distraught, sitting with his suitcases outside a room where mum was screaming in fear.’Martin, 56, a marketing consultant, immediately booked himself on the next flight to Naples, and when he arrived in Sorrento the next day, he found his mother ‘sedated, on a drip, and wearing a T-shirt covered in blood’.
He said: ‘It was an absolute nightmare situation. My 87-year-old dad hadn't slept for two nights and was very worried about his wife being treated in a foreign hospital, where no-one spoke English, for conditions she didn't have.‘He had literally been abandoned in a foreign land and was on his last legs. My mum, who was walking before she was forced into hospital, was now horizontal and sedated, covered in bruises and soiled clothing, alone in a very basic hospital bed. Nobody at the hospital seemed to know about her dementia and they were obsessed with finding a medical condition. The cruise company were nowhere to be seen.’
Mr Hayward Senior said: ‘I could not have endured it very much longer without becoming a casualty myself. What almost literally saved my life was meeting Martin, my son, who had just flown in. After seeing Marguerite, who briefly opened her eyes and tried to speak, Martin took me somewhere for a meal, the first food I had had since dinner on the ship on the evening before they decided to throw us off.’
Martin arranged for his exhausted father to fly straight home, then spent a week caring for his mother and arranging an air ambulance to get her back to Britain.He said: ‘In the hospital, she was dehydrated and not given food and simply left to lie in bed under sedation, without the care needed to prevent bed sores which we are told now were exacerbated by her lack of food. Her agitation increased since she was put through so many unnecessary tests. I tried to give mum a sip of water. Her mouth was completely gummed up with dead skin after four days of the oxygen mask. I kept syringing water into her mouth.’

Martin claims he rang Seven Seas for help but was told the matter was in the hands of the port agent and the couple’s insurance company. He said no one had seen the port agent after the first day.Mrs Hayward was eventually flown back to the UK on May 3 by private air ambulance – although Martin had to make his own way home – and is now recovering at the West Suffolk Hospital in Bury St Edmunds.
Her husband said: ‘She came back from Italy in a very poor way. Her physical injures alone include extensive bruising, damage to her heel and severe bed sores. The wound nurse told us yesterday that the bed sores would take weeks and potentially months to heal. She is still traumatised and distressed. At least now she is in good care. All of the staff at the West Suffolk Hospital have been wonderful.’
Mr and Mrs Hayward have been married for 63 years, having met after he returned from the Korean War where he served as a corporal in the Royal Electrical and Mechanical Engineers. He also served in the Suez Crisis. After the Army, he worked in sales and became marketing director of a multinational company. The couple have two sons and three grandchildren.
Their other son, Anthony, 57, a company director, said the whole family was furious. He said: ‘Mum and dad were forced to disembark the ship against their will in Sorrento despite mum being calm, alert and walking unaided ready for breakfast. They pleaded to be able to stay on for one more day. They even offered to be locked in their cabin if the ship wanted to reduce any perceived risk. They were forced into a series of events that has had a devastating impact on mum and dad's health.’The sons have written several letters of complaint to the company’s CEO in America, Frank Del Rio, but have still not had any reply.
Yesterday a spokesman for Regent Seven Seas said: ‘We are sorry to hear about the complaints of the Hayward family, but our prayers are still with Mrs Hayward for her complete recovery. While we understand that this is a very distressing time for the family, we don’t fully agree with all the claims being made. To preserve our guests’ privacy, we cannot comment to the specific medical situation for which Mr Hayward had requested urgent assistance, however it is our first priority to consider the safety and security of every one of our guests. With this in mind, the shipboard doctor determined that it was in Mrs Hayward’s best interests to receive the attention of medical specialists on shore, to which Mr Hayward agreed.
‘Our port agent and our shipboard staff made arrangements for both Mr and Mrs Hayward to be taken to hospital; offered a hotel room; and contacted their insurers to liaise with the medical professionals in hospital. Mr and Mrs Hayward were introduced to the port agent, and a member of Regent’s team contacted their insurer while still on board the ship. They were then escorted to an ambulance by one of the ship’s medical staff. The port agent has confirmed that the Haywards had access to the hospital’s interpreter from the day of admittance.’
The Haywards dispute the company’s version of events.


SOURCE: MailOnline, Sam Greenhill and David Williams


Monday, 3 July 2017

Rabbits, guinea pigs, and ferrets - the unlikely dementia therapy coming a care home near you

Rabbits, guinea pigs, hens and ferrets are being used as an unlikely therapy in the battle against dementia and loneliness.


Stepney City Farm in East London is one of several organisations which has started taking a menagerie of furry creatures to hospital in-patients and those living in residential and nursing homes.

They hope that allowing pensioners to cuddle and bond with the animals it will boost their mood, self-esteem and stop them feeling so isolated.
As part of the Furry Tales project, the farm also runs a social club for over 65s where older people can feed and care for the animals.


Around 850,000 people in Britain suffer from dementia and last year the Local Government Association said that loneliness in over 65s should be treated as a major public health issue.
“We take small, furry and feathery animals – including guinea pigs, rabbits, chickens and ferrets, to meet isolated older adults facing disadvantage,” said Merlin Strangeway, Furry Tales Outreach Lead at Stepney City Farm.

 “These creatures offer comfort physically and emotionally, bringing about much conversation, reminiscence and laughter. We are passionate about linking nature and laughter in later life.”
Charity Age UK has said that loneliness ‘blights the lives’ of over a million older people in Britain.


Recent studies have shown that socially isolated people have a 64 per cent increased chance of developing clinical dementia and are 30 per cent more likely to suffer a stroke or heart disease.
Loneliness has also been linked to a compromised immune system, high blood pressure, and ultimately, premature death and experts now believe it can be as damaging to health as smoking.  

A similar project called HenPower, was dreamed up by creative ageing charity Equal Arts to tackle social isolation, reduce depression and improve people’s wellbeing.
Originally launched in the North East in 2012, it has now been rolled out in 40 care homes across Britain.
Lesley Hobbs, manager of Deerhurst Care Home in Bristol, said: “The hens come into the home and you see residents light up.
“The sense of ownership and daily jobs such as collecting eggs has given purposeful activity and increased teamwork for everyone involved. It is simply a brilliant project.”
Ossie Cresswell, an 87-year-old ‘hensioner’ from Wood Green, sheltered-accommodation bungalows in Gateshead, near Newcastle, who lost his wife in 2004, said: “Next to blindness loneliness is the worst thing you can have, it is a big affliction.
“It can destroy a lot of people. I know because I’ve been through it. At 87, hens are the biggest thing in our lives.”

A study by the University of Northumbria found that the male participants of HenPower all reported improved wellbeing, and reduced depression and loneliness.
 In one dementia care home it found that since the hens had arrived violent incidents by residents were down by 50 per cent, and the use of antipsychotic drugs was so reduced that they were no longer issued routinely.


SOURCE: The Telegraph, Sarah Knapton


Saturday, 1 July 2017

People in South Tyneside have helped an Alzheimer’s support charity recruit two million new supporters.

The Alzheimer’s Society says a staggering two million people have now become ‘Dementia Friends’ - including 2,760 in South Tyneside. The charity says this support is vital - meaning one in every 30 people in England, Northern Ireland and Wales are now involved in the biggest ever social action movement to change perceptions of dementia.


The Dementia Friends initiative was launched in 2013 to tackle stigma that results in social exclusion for people with dementia and since then it has been transforming the way people act, think and talk about the condition.Dementia is the biggest health and social care crisis facing society today. Someone develops the condition every three minutes and too many are facing it alone.


Oscar-nominated actress and UK Global Dementia Friends Ambassador Carey Mulligan has experienced first-hand the devastating impact of the condition, and has spoken candidly for the first time since her grandmother died with the condition earlier this year. She said: “Dementia can devastate lives. I’ve seen first-hand through my grandmother exactly how hard it can be and find the idea of people with dementia being excluded from society deeply distressing.

“Dementia Friends has made huge strides in tackling the social isolation many people with dementia experience and the two million milestone is an incredible achievement – but we have a long way to go before society is fully accepting and need people everywhere to unite against the cruel stigma associated with dementia”.


Dementia Friends Regional Officer Joe Kirwin said: “It’s encouraging to see what a difference can be made when people become Dementia Friends. Up and down the country, people are no longer being excluded in their own communities.


“The public response so far has been phenomenal, but we must not lose momentum as dementia continues to be the biggest health and social care crisis of our time. “We need all of society to unite with us against dementia by becoming a Dementia Friend.”

SOURCE: The Shields Gazette, Tom Patterson